장애아동 비장애 형제 생활경험의 근거이론적 분석 (The Grounded Theory Analysis on the Life experience of Non-disabled Siblings of Children with Disabilities)

서지정보

· 발행기관 : 한국지체·중복·건강장애교육학회
· 수록지 정보 : 지체.중복.건강장애연구 / 51권 / 3호 / 199 ~ 218페이지
· 저자명 : 구자현, 한경임

초록

일반적으로 장애아동의 존재가 가족 기능에 많은 영향을 미침이 여러 연구에서 보고되어 왔다. 특히 비장애 형제는 장애아동의 존재로 인해 일반적인 가정에서의 생활과는 다른 생활경험을 겪을 수 있음을 예상할 수 있다. 본 연구에서는 이러한 장애아동의 비장애 형제의 생활경험을 질적 연구방법 중의 하나인 근거이론 접근방법에 따라 분석하였다. 연구 대상은 11세-15세의 장애아동의 형제인 5명으로 14세-17세의 중학생과 고등학생이었다. 연구참여자와의 심층면담을 통하여 자료를 수집한 뒤 면담 내용을 모두 전사하고 개방적 표본 추출 방식에 따라 가능한 다양한 개념과 범주를 찾는 데 주력하였다. 연구결과 장애아동의 비장애 형제의 생활경험과 관련된 모든 경험이 중심현상인“답답함”을 중심축으로 전개되는 것으로 나타났다. 중심현상을 생성시키는 인과적 조건은 장애아동이“걸림돌”이 되고“창피함”으로 느껴지는 것이었으며, 중심현상의 강도에 영향을 주는 환경적 요소인 맥락으로는 “부모의 양육태도”,“따돌림”,“사회적 편견”이 작용하였다. 중심현상의 해결에 영향을 미치는 중재상황에는 “교육효과”,“성격 양상”,“지지원”이 작용하는 것으로 나타났다. 중심현상을 해결하기 위한 전략으로는 “책임전가”,“거부”,“다스림”을 사용하며, 그에 따른 결과는“포기”,“희망”,“불안감”으로 분석되었다.

영어초록

The purpose of this study was to categorize Life experience of non-disabled siblings with disabled children based on the grounded theory. Moreover, it was to classify life experience types of non-disabled siblings based on core phenomenon, context, intervening condition, coping strategy and result.
The subjects were 5 non-disabled siblings with younger disabled brother or sister, and they are 3 male subjects and 2 female subjects and 14～17 years old. In-depth interview was conducted with recording by MP3 player and their interview data were transcribed. those data were analyzed by the grounded theory method of Strauss and Corbin. The results are as follows;
First, the data were analyzed into 135 concepts, 33 subcategories and 15 categories.
Second, the core phenomenon they have felt during their lives was "stuffiness". The causal condition contributed to the stuffiness were "obstacle" and "shame". As, contexts "upbringing attitude of parents", "isolation" and "social prejudice" had an effect on the core phenomenon. The intervening conditions were "education effects", "types of characteristics" and "support system". They made an influence on their coping with the core phenomenon. And the non-disabled siblings responded to the core phenomenon by using "shifting the blame", "deny" or "anxiety".
Third, according to the grounded theory paradigm, the life experience type of non-disabled siblings were 4 types.
The 1 type siblings had strong stuffiness, severe favoritism of their parents, excessive isolation and tough social prejudice, but had high education effectiveness of their siblings with disability, and independent characteristics. Therefore, they took the "control"strategy and "hope" as a result.
The 2 type sibling had weak stuffiness, severe favoritism of parent but had, scarce isolation and limited social prejudice, and had low education effect but he has independent characteristics. and many support system. They also took his disabled brother the "control" strategy for his stuffiness and has "hope" as a result.
The 3 type sibling had strong stuffiness, low favoritism of parents, excessive isolation and tough social prejudice, but have high education effectiveness of his sibling with disability, and independent characteristics. Therefore, they took the "control" strategy for his stuffiness and had "hope" as a result.
The 4 type sibling had strong stuffiness, severe favoritism of parents, scarce isolation and tough social prejudice, and had low education effectiveness of her brother with disability, and dependent characteristics. Therefore, they took "deny" and "shifting the blame" strategy for her stuffiness and had "give-up" as a result.

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